National charity Young Epilepsy are hosting events in London for families to share their experiences and ideas for accessing online support.
The aim of the project will be to launch a safe space online where young people living with epilepsy, and their families, are able to access information, advice, support and guidance. Users will also be able to interact with others on the platform and can ask questions or share their own experiences.
Young Epilepsy are holding a series of workshops where young people and parents will be able to tell Young Epilepsy their ideas, have their voices heard and be able to take part in a creative session seeing how a digital product is developed. Participants will also have the opportunity to connect with other families affected by epilepsy.
Epilepsy is a neurological condition that disrupts the normal electrical activity our brains use to communicate with the rest of the body. This disruption causes seizures.
There are over 40 different types of seizure and every young person’s epilepsy is unique to them. In order to be diagnosed with epilepsy, a young person must have had at least two seizures.
112,000 children and young people in the UK are living with epilepsy. Epilepsy is one of the most common long term conditions that affects children.
Young Epilepsy is the children and young people’s epilepsy charity which exists to create a society where children and young people with epilepsy are enabled to thrive and fulfil their potential.
The sessions in London will take place in Canada Water on 22 October for young people and 18 October for parents.
For more information and to sign up to the sessions please visit bit.ly/epilepsyworkshop